Wednesday, March 9, 2011

up to my eyeballs in therapy

today i had a bit of a meltdown. which then led to asher graduating from occupational therapy. why is he in occupational therapy you ask? because of his poor muscle tone. uuum...excuse me? what? "ya, remember when he first came in and he was all balled over and slouchy?" "he was 4 months old..."
i told the therapist that my friends are asking why he's in therapy and i don't know why he's in therapy anymore. we did the swallow study, we can see that he has a little bit of "asperating" when he swallows. but why is that? "poor muscle tone." ??? again with the poor muscle tone. really? he's a ball of muscle. he has baby fat and he's hard like muscle. not like a rock-don't go that far overboard here with me. so i took him to an ear nose and throat doctor who referred him to an aerodigestive clinic who first wants a sleep study done before they'll put him on the list for the "board" to discuss when they decide in their weekly meeting if he would qualify for the aerodigestive clinic. i'll schedule that after i get the results from the pediatric baby opthomologist appt but i really think that appointment won't be necessary. see, he has to go to that because his eyes are watery. i think they're just watery because i have to put baby oil in the tub with him now to help with his eczema. ya, the allergist said to take him off peanuts, egg whites, (not the whole egg...just the whites) oranges, tomatoes (only raw tomatoes, not sauces or cooked tomatoes), and i'm not supposed to introduce more dairy (milk) until the eczema clears up in a few months.
see where i'm going with this? i'm exhausted from his appointments that needlessly lead to yet more appointments on a perfectly healthy baby!!!! i'm drowning in appointments and therapies and evaluations and tests and diagnoses that i don't think are quite accurate. thank god he came with medicaid. or maybe it's the medicaid that's a problem...maybe that's why we get scheduled for test after test after needless test!
anyway-this was the attitude i went into therapy with today and thus the reason we have been discharged from ONE appointment in the week. i figured out today that since june we have driven to the therapy center approximately 40 times. 30 minutes both ways DURING naptime. you can imagine how well that flows for kids on a schedule. *sigh* NOT well at all!!!!

1 comment:

Suzanne said...

We are headed to the pediatric opthamologist tomorrow morning in fact! I do wonder how much Medicaid plays into this...